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Rank: Advanced Member  Groups: Registered
Joined: 9/3/2011 Posts: 717 Location: Torbay
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Ever since I switched from the attachable syringes to Metoject ready to use ones I have been suffering diarrhoea about 20 hours after taking my injection. Has anyone else had this effect. I took Mtx for over 2 years without this problem before I went onto Metoject. Surely it has the same ingredients in. Any thoughts anyone?
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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That was one side effect that I DIDN'T have. :) Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012)
Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 7/2/2013 Posts: 41
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I have this 'wonderful' side effect (not) ............ I have it about 3 or 4 times a week so I don't really know if it is the metoject or any of the other drugs!
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 242
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Hi Naomi
If I was you Naomi I would report this to your doctor or rheumatology nurse. I have just started Metoject and feel ghastly on it with awful chronic fatigue, no diarrhoea as yet.
However, how many folic acid do you take a week as this seems to vary so much? I have been prescribed 5mg taken 6 days except metoject day. I know some people who take it only once a week. It is supposed to help with side effects, might be an idea to find out if you can increase your folic acid? How long does the diarrhoea last for?
I hope you can find a solution, how awful for you when you didn't have this on your previous metho syringes?
Best of luck
love
Rebecca
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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Hello Naomi I think you should phone your specialist nurse about this. If it was a one off happening then I wouldn't of bothered but if it keeps happening it's got to be down to the new injection. If people don't report it, then they aren't aware of it. I hope they don't change mine now after reading this thread  Paula x
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Rank: Advanced Member Groups: Registered
Joined: 9/3/2011 Posts: 717 Location: Torbay
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Rebecca, I take 6 folic acid pills a week. I don't think this is the problem because I was fine with the old Mtx injections.....it's only since I have been on Metoject that I've had this problem. I spoke to the nurse today and she said I'm not the only one who has reported this problem.....though most are fine. she said it might be the lubricant that is used to help the needle in and to persevere for a few weeks. A friend suggested wiping the needle with the alcohol wipe.....so that's what I'm going to try. I'll let you all know soon xxx
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 242
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Sorry Naomi, I didn't realise you were taking 6 folic acid. It will be interesting to see if wiping the needle solves the problem, thank you for posting this info in case anyone else is having the same problem. Can I just ask you if you get chronic exhaustion for a few days following the injection? I have only been on metoject for 2 weeks and the fatigue is horrendous, I just want to sleep all day.
let me know how you get on.
Love and best wishes
Rebecca
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Rank: Advanced Member  Groups: Registered
Joined: 2/7/2013 Posts: 71 Location: Suffolk.
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I get really dreadful stomach upsets every week on the metoject, but they are better than when I was on the oral MTX.
The day after I inject is basically a write off between the throwing up, fatigue and general vileness. My body just doesn't like MTX.
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Rank: Advanced Member Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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Louisa wrote:The day after I inject is basically a write off between the throwing up, fatigue and general vileness. My body just doesn't like MTX. Louisa your RA must be bad for you to tolerate all those side effects! I gave up on MTX when it put me in hospital with a severe reaction Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012)
Ulcerative Colitis (1990)
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Rank: Advanced Member Groups: Registered
Joined: 2/7/2013 Posts: 71 Location: Suffolk.
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I'm about to start Humira. I have been told I have to stay on the MTX to get the Humira (which is the only reason I have stuck with it) but that I can then negotiate coming off the MTX. I would cheerfully never go near the stuff again.
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Rank: Advanced Member Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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Louisa wrote:I'm about to start Humira. I have been told I have to stay on the MTX to get the Humira (which is the only reason I have stuck with it) but that I can then negotiate coming off the MTX. I would cheerfully never go near the stuff again.
I think someone is telling you porkies. I told my rheumy team very firmly that the side effects were too severe and I was not taking any more of it. It did not derail my Humira path (it fell apart later for other reasons, but that's a separate story). If they know of your side effects and are still insisting you take it then that sounds crazy to me. Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012)
Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Louisa,
i would definately be onto my Consultant about your symptoms .. they sound to severe to put up with,
i've been on Humira for over two years now and i did have to stay on 10mg Methotrexate (which i still take) and Hydroxy which i have recently come off.
but at the end of the day it's your body and if you feel so bad on Methotrexate then i would be pushing for a change, i know of others on here that take Humira only, worth discussing again i think.
Suzanne
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Rank: Advanced Member Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Naomi,
sorry can't help with your problem,
hope to hear you are improving soon,
Suzanne
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Louisa, I`ve been taking humira on its own now for six years, without MTX, which put me in hospital when I was put on it after failing on sulphasalazine. My consultant has always said that if the humira is doing a good job solo - which it is - she has no plans to throw a DMARD in. Should it begin to lose its efficacy, she will try one of the DMARDs I haven`t yet been on, which would probably be hydroxychloroquine. Kathleen x
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Rank: Advanced Member Groups: Registered
Joined: 9/3/2011 Posts: 717 Location: Torbay
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I wiped the needle with the alcohol wipe. The diarrhoea was less severe (more firm....sorry if TMI) but went on all weekend rather than coming fast and furious within an hour. Sigh.....preferred the fast and furious. At least it gets it over with.
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Rank: Advanced Member Groups: Registered
Joined: 2/7/2013 Posts: 71 Location: Suffolk.
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Thankyou everyone for your replies to me, this is VERY interesting. I was told by a specialist (not my normal consultant) that I could only proceed with Humira by staying on MTX owing to non negotiable guidelines set by some authority, but once I was on it I could 'negotiate' my MTX with my consultant.
I start my Humira next Wednesday.
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Rank: Advanced Member Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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Good luck then! Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012)
Ulcerative Colitis (1990)
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